Hello from the Mayo Clinic--
This week was supposed to be "The" week, so they admitted Zed a day earlier (tue-21st) than they had originally told us. We were taken a little off guard, but we decided that, hey let's get this thing started. Well they admitted him, started to get his IV fluids and pre-chemo meds going and then Tue evening he spiked a fever (around 101). He was feeling great and almost called the nurse a liar. She called the Dr (who called the nurse, who called the lady with the alligator purse--ha ha- can you tell I'm getting a little stir CRAZY!) anyway he said to get blood cultures and then give him some antibiotics. After they got those going, Zed asked the nurse to re-take his temp, I think he thought for sure she had done it wrong, and it was 103. Soooo, they have continued to give him antibiotics waiting for the blood cultures to come back and he keeps having fevers off and on, still feeling perfectly fine with scattered flurries of boredom! Last night they decided to culture again and this morning his Dr said the cultures are growing--with some sort of bacteria and won't know more until the rest of the labs come back tomorrow (fri). They are therefore not going to go forward until they get this cleared up (too dangerous!) They will continue to give IV antibiotics thru the weekend, probably release him Fri, then re-admit him middle of next week. I told him I think one of the lessons we are supposed to be learning from all of this is PATIENCE! And we are both struggling with the learning curve. Here are some more pictures, some of our hotel rooms(both of them-ha! ha!) I don't much like the one with all the traffic in and out all thru the night, and a few of Zed. So anyway thanks again for all of your love and concern and thoughts and prayers! We love you all and feel a little like this is all some sort of weird dream. The people here have been very nice to us however and it's weird but the other visitors coming and going all make you feel welcome too, like we all part of some weird club together. Talked to a couple from Hawaii yesterday whose son (Kory's age) is here with almost the identical situation as Zed's. He just finished his chemo and is scheduled for transplant tomorrow. We still realize how very blessed we have been and continue to be, to be able to be here for treatment! Love to all--
Lannis
This week was supposed to be "The" week, so they admitted Zed a day earlier (tue-21st) than they had originally told us. We were taken a little off guard, but we decided that, hey let's get this thing started. Well they admitted him, started to get his IV fluids and pre-chemo meds going and then Tue evening he spiked a fever (around 101). He was feeling great and almost called the nurse a liar. She called the Dr (who called the nurse, who called the lady with the alligator purse--ha ha- can you tell I'm getting a little stir CRAZY!) anyway he said to get blood cultures and then give him some antibiotics. After they got those going, Zed asked the nurse to re-take his temp, I think he thought for sure she had done it wrong, and it was 103. Soooo, they have continued to give him antibiotics waiting for the blood cultures to come back and he keeps having fevers off and on, still feeling perfectly fine with scattered flurries of boredom! Last night they decided to culture again and this morning his Dr said the cultures are growing--with some sort of bacteria and won't know more until the rest of the labs come back tomorrow (fri). They are therefore not going to go forward until they get this cleared up (too dangerous!) They will continue to give IV antibiotics thru the weekend, probably release him Fri, then re-admit him middle of next week. I told him I think one of the lessons we are supposed to be learning from all of this is PATIENCE! And we are both struggling with the learning curve. Here are some more pictures, some of our hotel rooms(both of them-ha! ha!) I don't much like the one with all the traffic in and out all thru the night, and a few of Zed. So anyway thanks again for all of your love and concern and thoughts and prayers! We love you all and feel a little like this is all some sort of weird dream. The people here have been very nice to us however and it's weird but the other visitors coming and going all make you feel welcome too, like we all part of some weird club together. Talked to a couple from Hawaii yesterday whose son (Kory's age) is here with almost the identical situation as Zed's. He just finished his chemo and is scheduled for transplant tomorrow. We still realize how very blessed we have been and continue to be, to be able to be here for treatment! Love to all--
Lannis
bed in hotel room
View from front door of Hotel room
Entering the library